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ijustcantsaythatword

mayu and vic's artistic response to mayu's diagnosis and treatment of breast cancer

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cancer

Releasing my hair to the spirit world

Video by Miho Watanabe

On the eve of my visit to Tokyo to see my family for the first time since my breast cancer diagnosis, dancer Tess De Quincey helped me organise a toro-nagashi on Tarban Creek, which flows behind her home in Hunters Hill. Toro-nagashi is a Japanese ceremony in which participants float paper lanterns down a river. It is traditionally performed during the O-bon Festival in the belief that it will help to guide the souls of the departed to the spirit world. Outside Japan, toro-nagashi is closely associated with images of commemorative services, such as the of the atomic bombing of Hiroshima, or more recently, that of the Great Tohoku Earthquake and Tsunami.

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Paper with my hair by Zela

It took me several of days to make our toro-nagashi lanterns, helped and guided by my friend and artist Miho Watanabe , who designed biodegradable lanterns, using paper made by Queensland artist and relative Zela, using my fallen hair from chemo therapy, and later the hair shaven during my danpatsu-shiki or the hair cutting ceremony.

The paper lanterns flowed down the creek and out to sea, or so I would like to write. But in reality they bumped into each other in the current, their candles blown out by the wind, and we ended up fishing them out of Tarban Creek before they reached Sydney Harbour. Never mind. It was still a beautiful evening when some of my very close friends who were there for me during my breast cancer treatment, including artist Vic McEwan, my collaborator for this project I Just Can’t Say That Word, and photographer Michele Mossop, who had been documenting my experiences with her camera, gathered to help me release my past: the soul of my departed long black hair, which had given me a strong sense of self-identity for a very long time.

We all sat around the table in Tess’s home and ate together afterwards.

-Mayu

Playing Chemo

Mayu: I just can't say the word Macquarie University Private Hospital 27 September 2016 2nd round of chemotherapy Photo ©Michele Mossop
Mayu: I just can’t say the word
Macquarie University Private Hospital
27 September 2016
2nd round of chemotherapy
Photo ©Michele Mossop

It’s a shocking thing

Bashed and beaten and bruised

From cell to molecule to atom

Bent over, barfed and bled

In an edgy orgy sort of romance

Heal me, repel me, tell me, I yell

And I’m still laughing silly

Fuck me with your drugged out mind

Flying trip on a steroid high

And go, go, go, throughout the night

Nab me, grab me, jab my tit

Poison me with drips in my vein

And maybe I like it, want it, need it

A bit of rough tough play

With you by my side

Mayu: I just can't say the word Macquarie University Private Hospital 27 September 2016 2nd round of chemotherapy Photo ©Michele Mossop
Mayu: I just can’t say the word
Macquarie University Private Hospital
27 September 2016
2nd round of chemotherapy
Photo ©Michele Mossop

danpatsu-shiki (hair cutting ceremony)

After several days of severe hair fall out during the end of my first chemotherapy cycle, accompanied by my two very close friends, dancer Tess de Quincey and photographer Michele Mossop, I underwent a danpatsu-shiki. Tess ceremonially cut and shaved my hair. Michele documented the process. We ate together afterwards.

Photo by Mayu Kanamori
Photo by Mayu Kanamori

Upon retirement of sumo wrestlers, samurai becoming a ronin, commencing Buddhist priesthood, entering middle school, becoming a member of a sporting team, military service and much more, danpatsu-shiki, or the hair cutting ceremony, carries a special significance in Japan as a rite of passage. In the present day, YouTube is full of videos of pimply teenagers shaving each other’s hair before joining a club, drunk salary men shaving their boss’s hair for his retirement, and teenage idol holding a danpatsu-shiki with a trendy hair dresser to declare to their fans they are now to become an adult artist.

Photo by Michele Mossop
Photo by Michele Mossop

Here in Australia, there had been couple of danpatsu-shikis I have personally attended. During the farewell party for Japan Foundation, Sydney’s then director Koji Okamoto, his deputy Masaki Baba invited his boss’s 70 or so surprised party guests at their former gallery in North Sydney to take turns ceremonially cutting and shaving his hair inch by inch. When Japanese butoh group Byakko-Sha performed at Melbourne’s Spoleto Festival in the late 80’s, they began their show every evening at the Playhouse in Melbourne Arts Centre with a haircutting ceremony of an Australian volunteer on stage.

Despite having shaved my head for looks, fashion and attitude in my mid 30’s, this time I didn’t want to lose my hair. It annoyed me every time someone said I could try shaving my hair instead of losing it. If you think a shaved head is going to look cool, why don’t you try? I’ve been there, done that, and I remembered the extreme reactions it produced. I didn’t like it.

Loved by heterosexual women who on some level saw it as liberation from the heterosexual male ideal of woman with long hair; hated by people who avoided eye contact because they thought I was a skin head or Neo Nazi; and marginalised by people who averted their eyes because they thought I had cancer and they either felt sorry for me or were confronted by the potential of a life threatening illness.

Photo by Michele Mossop
Photo by Michele Mossop

Until I was in the position myself, I didn’t know, and I would have probably said similar things to anyone else facing losing hair with chemotherapy. But I now know that it angered me every time someone said to me that my hair would grow back. I knew it was said in a supportive spirit, but it didn’t acknowledge the fact that I was grieving. Instead, it belittled my grief, and suggested I was fussing over nothing.

… and if you are one of the many other close friends, who told me my shaven head I looked wise, peaceful and serene like that of a Buddhist nun, I thank you for the compliment, but I must say… I don’t want to become a nun. I want to be hot red blooded and with passionate uncontrollable indecent desires!

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Photo by Michele Mossop

As it is, it took me nearly 5 weeks to make this post, because it troubled me to look at Michele’s photographs and video rushes. My apologies to Michele – her images are beautiful; and my apologies to Tess – her artistic direction and treatment of my hair was exquisite and gentle; yet I couldn’t bear seeing myself going through this ceremony. To me seeing the images felt brutal and harsh.  So I asked my collaborator for this project I Just Can’t Say That WordVic McEwan if he would like to do something with the video footage, but he said he found it too confronting to make something out of it without us both spending substantial time together.

Another close friend of mine, anthropologist Dr Keiko Tamura from ANU, who I stayed with in Canberra whilst researching on my other art project (Butterfly Project), sent me an encouraging email:

Do you remember when you were in Canberra in February, when we discussed the process of metamorphosis on our verandah whilst the three of us had dinner? Could you not think of your current state as a metamorphosis? It maybe at a time similar to when the butterfly is born out of a chrysalis or a snake repeatedly shedding its skin to grow; it must be worrisome to see your body undergoing change, but there is another stage to come. You will be able to withstand these difficulties and grow even further.  – Keiko

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Photo by Michele Mossop

I still dislike the way I look. I wear various wigs (courtesy of De Quincey Co, Liz Stokes and Ken Cleveland) in public instead of showing off my brave new shaven head. I am still coming to terms with the meaning of the rite of shaving of my hair and the passage of this stage in my life. I also know that a rite of passage in some cultures can be scary, even violent.

All I can say for now is that something has definitely changed since the danpatsu-shiki. For a start, I’m not afraid of writing the truth… even if it isn’t all positive and upbeat… which means I am stronger.

Photo by Michele Mossop
Photo by Michele Mossop

Watch this space.

 

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